My daughter is a teenager and my neuro believes she has MG now. She has double vision, weakness in her arms/legs/hands, jaw fatigue, and ptosis in both eyes.

So far she is seronegative (like me) which they expected but her pulmonary function tests show severe weakness of the diaphragm in PI max and PE max which I believe is the same as maximum inspiratory/expiratory pressure. Her #'s are in the 30 percentile of predicted value.

She has started on mestinon which helped a lot the first few weeks but the effectiveness seems to be wearing off.

They have told us it is not genetic so how the heck can this happen?! I am heartbroken....debra