Bilateral MEGA PAIN started in January 2007:
Carpal Tunnel (had surgery on both sides)
epicondilitis
shoulder tendonitis
bursitis
fibromyalgia
mechanical over-usage
rotator cuff tears
wegeners granulamatosis (after false positive blood testing)

most people I know probably think or thought I was faking, or embellishing (especially since all the doctors here kept diagnosing me with different things, and all my mri-xrays-ct, etc showed nothing abnormal)...but I knew all along that I had TOS.

After 4+ years of chronic pain (felt like killing myself often), I decided that I was right about TOS, and just needed to find the right specialist. This proved very difficult in Canada...so I took a trip to St-Louis, got diagnosed with classic textbook "Neurogenic Thoracic Outlet Syndrome" bilaterally. I met with Dr. Robert Thompson, who was very calm, patient, insightful, and competent. He is also head of the TOS society in the United States.

I had bilateral pectoralis minor tenotomy a week later. Dr. Thompson is hopeful that this surgery, along with the physiotherapy treatment following it will help us avoid having the larger surgeries done. I am hopeful, and trying to stay positive. It's hard some days, or some points in a day. I am almost 4 weeks post up, and almost all my swelling is gone, the surgical pain is about 70% gone, but I have a lot of my pre-surgery pain, and more! My PT says it is normal (internal swelling and scar tissue) and that I will only see results starting in a few months.

I hate living with TOS, it's a nightmare that no one can understand unless they have it. Just typing this reply has kicked the crap out of me.

Good Luck my fellow TOSers