Hi I am so sorry for all your daughter and you as a mom are going through. I know I am older but the sadness and toll this has taken on my mom is so hard. She is my hope and strength. It sounds like you are your daughters.
On the news one day there was a young girl who had a gastric pacemaker. She did not have RSD I don't think but I do think that the pacemaker helped her greatly.
Sending warm thoughts. Happy Mother's Day