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Old 05-08-2011, 07:00 AM
kelli weber kelli weber is offline
New Member
 
Join Date: May 2011
Posts: 2
10 yr Member
kelli weber kelli weber is offline
New Member
 
Join Date: May 2011
Posts: 2
10 yr Member
Default Occipital Neuralgia

My Pain Mgmt doctor first diagnosed Occ. Neuralgia for me but then my Neurologist said that was not it. My thyroid doc said I had Fibromyalgia but my Internist said I do not. I had a car accident in 2006 that resulted in a mild head trauma. Occ. Neuralgia is exactly the description of my head pain symptoms. I had migraines weekly that would last days with shoulder/neck/scalp pain so severe I was not able to speak (no light sensitivity). Cymbalta caused me to have a seizure, Kadian helped a little, Flexiral just knocked me out, anxiety meds did nothing. In 2007 I went to a new Neurologist who gave me Topomax and my migraines went away instantly. I still take 100mg a day to this very day. I have no side effects except for slight tummy trouble but I have always had that so it may just be me. The reason my Neuro says I dont have Occ. Neuralgia is because he claims Topomax would not have relieved my symtoms if I had (its for a different type of migraine he claims). But it did help me and I was able to live again. I now take only Topomax and Avinza, which is very similar to Kadian, but only the lowest dose possible. There are no side effects for me with Kadian or Avinza but again I only took the lowest pain relieving dose possible. Good luck and if you are not getting results from your current doctors, find new ones as there are answers out there.
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