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Old 05-10-2011, 03:40 PM
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Quote:
Originally Posted by cyclelops View Post
Yes....and mine isn't fibro. I have managed to break bones, tear both rotator cuffs and I won't bore you with the rest. I have more ortho injuries than you can shake a stick at. I have confirmed PN and dysautonomia. I always feel like I have been run over by a truck, and I felt that way when I was in very 'good shape' so it isn't deconditioning. PN can cause a very deep aching pain as well as the traditional burning, tingling etc. You can get proximal neuropathy, and I have the same kind of pain you describe....chest, thoracic, abdominal etc. They make a good prescription brace for your spine that could help with that waist pain, called a Spinomed...designed in Germany, but available in the US. It resembles a flat backpack, and isn't huge and clunky and metal. Another thing you can get evaluated for is Ehlers-Danlos Syndrome. That said, there isn't really a cure or good treatment for this...it does tend to exacerbate and remit (a little), but it is a condition that we must learn to live with.
Cyclelops, I sent you a private message. I did take a look at the Spinomed. I haven't had any doctors mention it. I keep hoping for remission if there is no cure. I guess my remission is at night and the first hour of each day. The pain is not so bad then.
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