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Old 05-10-2011, 07:21 PM
Mariel Mariel is offline
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Join Date: Dec 2006
Posts: 724
15 yr Member
Mariel Mariel is offline
Member
 
Join Date: Dec 2006
Posts: 724
15 yr Member
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Sally, I love that quote "other than that, how did you like the play, Mrs. Lincoln?"

I too have had whatever I have in active form since 17, with a few preliminary attacks such as the one at 11 when I had poor eye-hand coordination and exhaustion which no one believed I really had....a precursor to years of the same later. I have been dx'd with MS, Porphyria, Polycythemia Vera, and Monoclonal Gammopathy. I may have them all. Porphyria has so many neuro symptoms like MS that it's hard to tell them apart, and I do have the brain lesions found on MRI a quarter century ago when I got MS diagnosis--about 25 years ago, too tired to count the years.
It's been a long life, Sally, for me too, and I'm wishing to go "Home".

Mariel

Quote:
Originally Posted by SallyC View Post
Poopy, you made me think about my MS..UGH!!!

Mine is pretty much like yours, Kell, except I don't walk much anymore. Sven, my scooter carries me to and fro, most of the time.

I miss not being able to do what I want to do, when I want to do it. My pain is managable, thank heavens. I don't know how some of you deal with chronic nerve pain.

Not only have I had MS, since my early 20s, I'm 70 yrs old, so I have a double whammy.. Aging and MS don't mix...ya don't know if your discomfort is from the MS, age or both.

My MS makes me feel like someone is physically abusing me every day of my life. I try to keep a possitive attitude and keep my psychy straight, so I can eek some happiness out for myself and others, but it is a damn struggle.

Other than that, how did you like the play, Mrs Lincoln.
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"Thanks for this!" says:
dmplaura (05-10-2011), Kitty (05-14-2011), SallyC (05-10-2011)