Quote:
Originally Posted by lorigood243
Hi Vanessa
Yes i have female issues...but i dont want to be pregnant...here is my story...
I had gallbladder surgery at age 42 and that instantly began my RSD.
then 2 years later i had another surgery where they cut me hip to hip to remove all the swollen tissue on my abdomen in hopes i would get better. w didnt know at that time that i had RSD yet.
After the second surgery age 44 my whole body went crazy. My period stopped instantly never to return. I went to my GYN several times because she was worried that one day i would hemorrhage. the doctor ran all the tests and she said you arent in menopause...she gave me the shots to make my period start and it never would. Im 48 now and its never come back since it stopped. other things that happened, i got high blood pressure, became diabetic, have diarrhea every day. sleep apnea, high cholesterol.
all of those things happened within 2 weks of the surgery, so i just thought i would share my whole picture. now 4 years later all the swelling came back with vengeance...85lbs...and im miserable and dont know what to do. so far the doctors say there isnt anything to take the swelling off. im looking for yet again, another new doctor.
blessings
Lori
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Hi Lori! Thanks for responding! I am sorry to hear about your attack. I wish there was something I could do. When I had my first attack, Which lasted 4 weeks, I was hospitalized at the end of the 4 weeks and pumped full of antibiotic and prednisone. I was in the hospital for 3 full days. It helped the swelling and about half the pain went away. Which I was grateful. I thought that eventually it would disappear completely but it never did. Took me years and 20 something doctors to finally figure out what was wrong with me. My period was actually the last thing on my mind until recently. Only because I would like to have a baby. I hope you were able to have children before this happened to you. This is a terrible condition and it can destroy a persons life if they let it. Its hard. Everyday is a struggle and I def. have my good and bad days. What state do you live in? If you happen to live in illinois I see a wonderful doctor here in Chicago. I live about 65 miles from Chicago but the drive to see him is worth it because he is the best doctor ever! He really cares about his patients. He has really helped me over the past year and a half. I still have attacks but not nearly as often since I started the proper treatment. I take neurontin, norco and also get spinal sympathetic nerve block shots every 8 weeks. It has helped a lot. I went from getting a horrificly painful attack every two weeks to about one a month and they only last a few days now. I have learned to deal with them. I still have constant pain but have managed to live with it. I dont really have a choice! My life now revolves around my foot but I can handle it better now. Are you looking for a pain management doctor? That is what you need. Are you on medications? Do not let these doctors turn you away. They can help. Go to the emergency room and make them help you. They cannot turn you away. I know how it is when this swelling attacks come. Its horrific pain. I lay there and scream and cry and i have even tried to cut off my foot with a knife just to stop the pain! (I was luckily stopped by my husband!) The pain can get so bad you dont know what your doing! Thank god he was there to stop me. The doctor said that we really are not in pain, our brains are telling us we are in pain and we react accordingly. This is such a horrible condition. I am curious, do you get spasms ever? Like a jolt of electricity going through your body that makes you shake uncontrolably for a few seconds? Thats painful? I have been getting them from the begining but only like once a month. In the past 6 months they have been coming more and more frequent. I get them atleast 6 times a day. I was just wondering if you experience the same thing? I am not sure if it is normal or I have someother issue. Please let me know if there is anything I can do to help you find a doctor who can properly treat you. There is no reason for you to go through attacks like this. My longest is 4 weeks. That was the second worst four weeks of my life. No one should go through that long of an attack. If they are then the doctors are not properly treating you. I had finally had enough and made them admit me and do what they had to to treat me. Just because these doctors dont know what it is doesnt mean they can push us out the door. They need to get someone there who can. I will never let a doctor brush me off again. If I ever have to go to the ER for this again you bet I will make them admit and treat me. If they dont know how then they will have to find someone who does. Like I said, Please let me know if I can help you in anyway. It breaks my heart to see someone brushed aside. No one deserves that and to be left to suffer. There is no excuse for it.