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Old 05-11-2011, 12:06 PM
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AynaDee AynaDee is offline
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Join Date: Jul 2010
Location: Illinois
Posts: 266
10 yr Member
AynaDee AynaDee is offline
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AynaDee's Avatar
 
Join Date: Jul 2010
Location: Illinois
Posts: 266
10 yr Member
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This honestly saddens my heart. And to be honest with you, completely verifies my thoughts on these drugs.

I am on Rebif, and I fight myself every other day on taking that shot, I do it, but I hate it.

My neuro is very supportive of the drug. I told him I do not like what it is doing to my body, how it makes me feel, and it upsets me to think of what I am putting into my body 3x a week and to continue to flare. He basically said "suck it up kid, you have MS, and no other choice."

I have been super sketch about this drug for over 2 years now.
I told my friend's father what the drug was, he was floored and asked me how much they were paying me to take that drug. He explained to me, that they really don't have the knowledge they claim on Interferon and that it is still in test trials, said he didn't understand how I could be taking such a horrific drug and it's costs.

I understand why my neuro refuses to take me off of Rebif after being on it for 2 years and still having flares and active lesions.

That article breaks my heart. This drug breaks my heart..

I think I am going to do what I think is right. after all. It is MY body and MY life. I'm just so terrified of dropping that drug off and seeing a wheelchair this early in life. But in the same sense, I'm still progressing on the drug, sometimes I feel the Rebif is making my MS worse

So what would happen if I give my body a break from the drugs?
What would happen if I change my diet to consist of alot of anti-inflammatory foods and got on a good vitamin regimen?

I just don't see that this drug is slowing my disease, I see it as irritating my disease. I see the nasty spots all over my body and think to myself "how could this drug possibly be doing beneficial things for this disease when it leaves such nasty marks and makes me feel so crappy?

I think I am going to take this into my own hands...
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Dejibo (05-11-2011), dmplaura (05-15-2011), jeep4wd (05-11-2011), nemsmom (05-13-2011), SallyC (05-11-2011)