
Dejibo
You. Are. AWESOME!
I am so glad to hear you are feeling better while being off the drugs!
How long have you been off the DMDs?
Have you seen progression since being off the DMD?
I sit back and think of how my body felt right after being diagnosed and still not on a dmd. Even though I was having some serious issues at the time, my body didn't feel as ICK.
Also, every injection site I have hurts. Very bad. Especially if I bump my arm on something or my boyfriend gives me a lil love tap on the rear or thigh, it will send me into tears, and I have a very high tolerance for pain (as we all do per this MonSter giving us so much crap on the daily).
My boyfriend freaks whenever I talk to him about considering to drop the drug off, so does his mom, but the thing is, they're not the ones that have to live with the feeling it gives me. They don't have to live with the pain my injection sites always feel. They don't have to worry about "where the hell am I going to inject tonight, every site is purple and red!!??!"
I agree with you Dejibo, I don't want to see a chair, but if it happens it happens. I'd rather feel decent now and deal with a chair, than no chair to deal with but can't enjoy life per feeling so sick all the time.
I dream of never having to take Rebif again. almost every night actually. I think my time is coming.....