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Elder
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Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
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Elder
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
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There were several on my facebook page that became down right aggressive when I told them that I did not want the angio. That I have insurance, so it wouldnt cost me anything, and I live close to NY so its not a long trip. I got BLASTED! how dare I not do this! I OWED it to the whole group of MS folks that are pioneers in this field. reallY?! I owe it?? really?? I found myself defending my position of wait and see. I also UNfriended a boat load of folks from canada that were trying to force the government to pay for this treatment before we really knew anything about it.
I am thrilled that some have found relief, but like Sal says, its not the cure all, that many had hoped for. Im a newbie at this whole MS finds a new cure thing, and I am not sure how you old timers to MS do it. Each year someone releases some new potent treatment or peice of information that is going to fix all that ails you. From Vitamin waters to Tysabri. the rollercoaster is exhausting.
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RRMS 3/26/07 .
Betaseron 5/18/07 .
Elevated LFTs Beta DC 7/07
Copaxone 8/7/07 .
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