Hi,

I am new to NeuroTalk, I registered today. I am hoping that with the help of others who suffer with RSD I will be better able to deal with it. I was diagnosed with RSD five years ago after a compartment syndrome injury while riding a bicycle! After three surgeries and six weeks in the hospital I was dishchared and went for six ambulatory surgical surgeries as well, to save my foot. I was extremely grateful to say the least.

I have tried to learn to live with chronic unrelenting pain, and for the most part I am. However, this has changed my life considerabaly. I can no longer some of the things I used to enjoy. I suffer with depression and have to manage that as well.

My doctor wants me to have another EMG next month to see if this has progressed. The thought of that happening is quite discouraging. The pain with this diagnosis is very difficult to be managed very well. It feels as if my foot is on fire and the nerves are right on the surface. Wearing anything on my foot is painful, even a sock. Sometimes vibrations can even make it worse. My family does not understand and that is upsetting for me. I rarely even complain or talk about it. I do not baby myself, I walk with a cane and walk a great deal. I have some paralysis due to the surgeries and I refuse to let it get worse. I have extreme sensitivity to hot and cold as well. I am insane or is this what happens with RSD.

I am hoping to learn and share with others from this and this seems like the perfect place to do this. I thank you all for sharing your experience and your hope. Maybe one day they will find a cure, but more money is needed for research.