Heck, this is a good subject that the entire forum of NT would probably chime in.....since most of us here at NT are in pain.
I know for certain the RSD forum would really jump on this with some helpful advice/suggestions (regarding our pain - in general) ....With the SCS added to the mix, certainly can make for an even tougher challenge. Maybe some points to ponder might be..
Has lack of sex put a strain on your relationship and/or do you feel you are slowly becoming more seperate from one another?
Does your spouse seem more angry/uptight/reserved than what you knew him to be?
Do you both still find times to have fun by doing other things, simple things like laughing together watching a funny movie? Or does your household just seem more 'cold' than ever before....
Do you 'bicker' and argue alot.....

These Q's don't have to be answered here, but just to ask yourself.

IMO I feel that intimacy is very very important in a relationship, yet it doesn't necessarily have to be sex. If you can honestly say that you are each other's best friend and you just like spending time together, then that's the bulk of it. If he needs 'manly' attention.... there are probably ways you can 'help' ifyaknowwhattamean....

To this day I carry a tremendous amount of 'guilt' around with me....not just on this issue, but pretty much on ALL issues! I just cannot be like I was before this @#$%^ came along.
I wrote something somewhere saying that "I've grown to hate life, because I can't 'live' it....motherhood 'hurts' too much cause I can't BE one....horseriding cause I can't DO it, and that I wish I never would have had the 'music' in me because it hurts too much now that it's gone.
Obviously I have yet to work thru some things.

It's been said many times before on this forum that we all have had to go thru a 'grief process' because it's like a part of us has died. Oh how i know.
The thing is, tho.....we really should do whatever we can to start from where we are right NOW and try to build upon that. Add one thing at a time and do it to the best ability you have. Don't compare it to what it 'used to be'.
Wow, listen to me preach We have no other choice really. It's up to us whether or not we want to live each day and capture the moment - did you hug your child today - did you make a baby smile - did you do a 'good samaritan' deed (oh how rewarding that is! No matter how small the deed, it's wonderful to see someone smile and know that YOU did that. Or, if you can't get out of the house, you can call someone just to make them smile, or send a note to someone....the 'old fashioned' way, lick a stamp! hooya

Anyway, sorry I went off on a rabbit trail there....

You've brought up a wonderful subject, Jenna. A very important one at that!
You are so young. I'll wager to say that it's probably a good idea to talk about it with hubby, let him know that you've been thinking on this and that it is bothering you. See what he has to say. At least you're showing him you care and haven't forgotten about this part of your marriage.

I hope more people join in and share on this

Rae