Welcome to NeuroTalk, amy! Sorry for the health issues that brought you here, tho.
I'm sorry you have so much pain -- hope the next shot does the trick for you.
I don't have the same physical problems that you describe, but you're right: no one understands what you're going thru. They look at a young person like yourself and expect that your health should be 100%.
How wonderful that you have a supportive husband. Best wishes to you for improved health.