Read everything you can - this board is an awesome resource, check out all the old posts. You can use the search tool in the upper right hand corner. Also go to the RSDSA.org website. Check out facebook, too. There are some good groups, like Ketamine Klub (started by a fellow Rhode Islander!!).
Just because no one has heard of the ketamine doesn't mean you may not find it where you live or in a nearby city. There are a lot of treatments that your docs may not be up to snuff about, because there aren't too many of us, and so they may not have a whole lot of experience treating RSD. Most of us have had to become our own best advocates. And more and more docs are starting to offer ketamine. So don't hesitate to ask about it.
Desensitizing your hand and arm may give you some of your life back. The RSDSA webiste has a physical therapy section with really good articles on the topic.
I'm really sorry for what you are going through. If it makes you feel any better, the first year that you become sick with RSD is usually the worst.
Sandy
Quote:
Originally Posted by amyb20
SandyRI: thank you for the support, i know i shouldnt say never, and i still have hope, just when im depressed, I feel like this is my life forever, which I hope it isnt... im fighting like hell to get rid of this disorder...im in physical therapy, and even when it hurts so bad im about to bawl, i still go through the pain, because im not letting this thing take me down completely, without a fight anyways! about the ketamine infusions, while i was at Mayo clinic in Rochester, they gave me a Ketamine cream..everyone around kansas city didnt know much about the stuff, so im assuming there is no doctors around here that do the infusions...i will look into this, because ive read alot of posts about that, Thanks!
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