Member
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Join Date: Dec 2006
Posts: 724
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Member
Join Date: Dec 2006
Posts: 724
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When I think of how much better I did on the Swank diet than my aunt did on her high fat diet (she had MS and died around fifty, blind, unable to speak, unable to move)! As some of you know, I had an MS dx, then a Porphyria dx, but I have realized they are not mutually exclusive. I believe that whatever I have is a cross over between MS and Porph.
If it isn't, it might as well be. There were three other MSers in my dad's family--his sister and two cousins. All dx'd with MS. But my dad, another sister, and my grandmother probably had Porphyria--hematologists say they would dx them even though they have passed on. So--of known relatives--three and three. I have had about equal
of doctors saying it's MS and saying it's porph. So the bottom line is this: does anything help? Yes, a diet helps. Swank diet. I never would have been able to take the CRABS
because I had the Porph part, but now, when I've tried Interferon for another disease I have now, Polycythemia Vera, I can see how MUCH I would have suffered on the CRABS.
I would have given up. But I didn't give up the Swank diet because it helped. I got sicker immediately when I went off it--lost balance, primarily, enough to put me back on the diet within days.
I don't say it will work for all. I say it is better than CRABS for some people. Definitely.
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