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Old 05-16-2011, 09:22 PM
Smokey56 Smokey56 is offline
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Join Date: Feb 2011
Location: Central IL
Posts: 57
10 yr Member
Smokey56 Smokey56 is offline
Junior Member
 
Join Date: Feb 2011
Location: Central IL
Posts: 57
10 yr Member
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Quote:
Originally Posted by BARBARA356 View Post
I need to know. I am getting worse. Weaker most all of the time. Been through all kinds of medicines. Imuran, didn't work, prednisone= only taking 10 mg every other day, try taking mestinon= doesn't seem to work for me.
Now taking Methotrexate, and I don't think it is working. Is life with Myasthenia a constant up and down rollercoaster? You do something, you have to rest. My rest time is a lot more than my doing time. Does this ever get better?
Hi Barbara, I sure don't claim to be an expert on MG but from what I have read and my own experiences it seems to be a very unpredictable disease. Stress, type of work, and age perhaps all seem to influence it as well. I was only dx about 3 months ago so still trying to figure out whats the game plan. I take 60mg of mestinon 3x a day and not sure how much it really helps. I don't have the shakes or tremors as bad as I did so that's a positive - however I have spells almost ea day of fatigue and shortness of breath - so far its manageable but some days its a challenge to do my job well. Thankfully I can sit back for a few minutes occasionally when I need to and rest for 15 min or so...
Took a 20 min walk after work today for an example and had gone only about 3 or 4 minutes and a sudden weakness hit me feeling like my legs were getting very weak - I pushed on and made the 20 minutes but it was determination that pushed me on. Excersice can leave you weaker but I don't think it really does any harm and hopefully helps a bit with weight mgmt and muscle strength even thought you may feel tired..?
How long have you known you have MG?
Randy
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