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Old 05-16-2011, 10:11 PM
deckvk deckvk is offline
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Join Date: May 2011
Posts: 1
10 yr Member
deckvk deckvk is offline
New Member
 
Join Date: May 2011
Posts: 1
10 yr Member
Default Sca 27

Hello,
I realize you posted this years ago but my grandson (who I am raising) was diagnosed with Spinocerebellar ataxia 27, TODAY! Your description of your daughter is like de-ja-vu. He didn't walk until he was 16 months old, he is now 6. His symptoms are: falls all the time, atypical seizure disorder, has poor vision, cognitive delays, poor reflexes and a "wobbly" gait. But he has learned to ride his bike with training wheels, and does the physical things as best he can like runnining, jumping playing etc. In addition his symptoms intensify to a point of complete motor control loss when he has a viral/bacterial infection that causes a spike in fever, and these episodes have been worse in the last year. But, his MRI's for the last 6 years have been normal...I fear that he is going get worse...I don't know what to expect or what his future holds...

Thanks for reading, hope to hear from you.
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