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Member
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Join Date: Nov 2006
Location: UK
Posts: 830
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Member
Join Date: Nov 2006
Location: UK
Posts: 830
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Yeh, I have this as well. I don't know about shoulders because I can't hold my arms out but I have lost almost all the muscles in my palms and between thumbs and fingers and also the muscles from the tips of my fingers and toes (looks very weird). I have a lot of "bony hollows" that "normal" people don't have.... which apparently is from muscle weakness. It's weird. It's also obvious with my hips, knees and feet - apparently it compounds the problem - severe pain and can't move - weaker muscles - therefore less stable joints - therefore more pain etc etc.
bizzare, as my muscle loss worsens so does my spasticity. Does anyone else get it? makes no sense to me.
hope it improves - physio really is the best for it!
FRxxxxxxxxxxxxx
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