Hi Barbara,
Sorry to hear you are having a rough time right now. MG can be unpredictable from person to person and day to day but once you find a treatment plan that works for you it can get better. I've had MG since 1995 and am now on Mestinon, Cellcept and monthly IVIG.
Hang in there. If you have a Neurologist who is willing to keep working with you to find out what treatment combination is best for you then that is half the battle. The other half is trying to find the patience to wait it out until you do find what that treatment plan is.
When do you see your Neurologist again?
You are in my thoughts and prayers
Shari