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Old 05-17-2011, 10:34 PM
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AynaDee AynaDee is offline
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Join Date: Jul 2010
Location: Illinois
Posts: 266
10 yr Member
AynaDee AynaDee is offline
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AynaDee's Avatar
 
Join Date: Jul 2010
Location: Illinois
Posts: 266
10 yr Member
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[QUOTE=tante;771358]
Quote:
Originally Posted by AynaDee View Post
May I ask what the 'fixed site reactions' were?

I

I have to come back to this tomorrow, but NO, mine were nowhere near what you speak of on your abdomen.
Does your Dr. know?

Tomorrow.... sorry.
I explained what they looked like to the nurse and she said that is a very common side effect of the drug. But the spots on my legs are big probably the size of a half dollar, the skin isn't as dry and dead looking as my abdomen. The abdomen spots are slightly smaller but the skin is much worse than my legs, almost looks like a peeling sunburn

I feel like they blow me off all the time, like they're burnt out on the MS community. They're very neglectful like trying to put me on drugs that I have already been on and have almost killed me. Or that the horrific pain I was experiencing on the right side of my body couldn't possibly be my liver because the liver is on the left side of my body (the docs at the hospital about fell over when I told them that my neuro's nurse told me that). AND I was on Rebif for two years before I had any blood work done.

Yeah, now that I'm reading back through that, I'm thinking I need to find a new neuro

What's even suckier about that is he's an MS specialist.
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"Thanks for this!" says:
Dejibo (05-18-2011)