Nigel -

Sorry for the delay in getting back to you; hopefully you'll have a chance to read this before your appointment.

The key thing to be asking about are the availability of "non-palliative" treatments, along the lines of those which I outlined in my post #17 in your thread RSD Specialists/clinics Germany at http://neurotalk.psychcentral.com/thread149765-2.html

And specifically, where some of those treatments may be more or less effective, depending on the state of the disease that you are in, it's my experience that the clock and calendar are relatively imprecise measurements of where we may be at any point in time. Accordingly, if price is no object, I would urge you to explore having a cytokine panel drawn: the same tests a departmental chair at the Mayo Clinic referred me to Johns Hopkins for in 2006, only to find - at that time - that while cytokine testing was taking place throughout Johns Hopkins' research labs, it was not clinically available.

Here's hoping you have better luck than I did.

Mike