Quote:
Originally Posted by BARBARA356
I need to know. I am getting worse. Weaker most all of the time. Been through all kinds of medicines. Imuran, didn't work, prednisone= only taking 10 mg every other day, try taking mestinon= doesn't seem to work for me.
Now taking Methotrexate, and I don't think it is working. Is life with Myasthenia a constant up and down rollercoaster? You do something, you have to rest. My rest time is a lot more than my doing time. Does this ever get better?
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Yes, this is the way this illness is. Or in more formal terms- the hallmark of myasthenia is fluctuative fatiguable muscle weakness.
Does it ever get better? yes, if you are in remission.
will you be in remission? that depends on many factors. the most important of them, in my opinion, is luck.
Will you be able to live with it better, even if you are not in remission? probably yes, this depends very much on you, those around you, and your treating physicians.