Hi All
Last night was another VERY interesting meeting. I am including a video I made at that meeting. It's at the end of this post.
The beginning of this video shows Steven (our Group Leader), speaking about how execise impacts neuropathy.
Then, Glen gave a presentation and he was his usual most eloquent self. Nicely done my dear Glentaj!!!
Steven, the Group Leader then introduced Dr. Suelane Do Ouro, who is a Neurosurgeon and is the Associate Director of Pain Medicine at Beth Israel.
Unfortuately, as I was videotaping her presentation my Flip's battery died. I apologize.
But she spoke about Neurostimulation as an option for chronic pain, and she explained how this is ideal for people who have neuropathic pain.
I had been under the impression that neurostimulation was only for people with spinal pain. How wrong I was.
I wish my Flip didn't die so you could hear the rest of her presentation. I found her to be very compassionate in dealing with people who suffer from chronic pain. She was forthcoming, and direct and answered everyone's questions. She was extremely approachable, which to me is very important.
I am going to get more information and post it on this thread. But for anyone who wants to call her office and get further details, here is a website that gives her contact info:
http://www.docnet.org/physicians/phy...?phys_id=10543
Alan is SERIOUSLY thinking about someday going for this.
They do a trial with the leads and wires OUTSIDE the body for the first week, and then, if one has positive results, you go back in and they implant it. This is done under sedation. After it's implanted, you can bathe, and shower and do regular stuff. You don't even know it's there.
She explained how opiates really don't help neuropathyic pain. Only the anti-convulsants seem to work sometimes but they have side effects.
It has been her experience that this reduces pain (not 100%) but close enough that people DO get relief.
We'll look into this further.
It was a great meeting.
So here is a link to my video that I made last night from that meeting.
http://www.youtube.com/watch?v=hfIv1nRb7Wk