Hi Amyb20,
My heart goes out to you and especially to the young people here. I have had full body rsd (Fibro, blah, blah, blah) for over 6 years now. I am 48 but physically feel like a 95 year old lady and mentally most of the time feel like I am about 20 years old haha. You are only as young as you feel so the saying goes so you need to forget for the time being about the physical parts that hurt now and concentrate on the inner you. Pull your strength from inside the strong you. I know it is upsetting esp cause you are so young. It is a huge blessing that you have a supportive husband, family, and friends. I have none of that (most people just deny my pain) but I pray alot and laugh at least once per day out loud (and more if I can). You now (for the time being) have a new normal to adjust too. Spend more time with your husband just doing quiet things like a walk in the park, watching a river or stream, etc. Try to do things now that you can do and concentrate on that. You will also grieve your old life as if someone died. You just have to go through it. I cried the first year or so every day and then I figured God has me here for a reason and if I can help one person out then I am doing a good job. This is the best place for advice and support that I have found. Vent to us...we are here for you.

About the having a child part. Don't give up that part of your life yet. I had five miscarriages (and started looking into adoption) because I was told I would never be able to have any children...I had my miracle and he is now 22 years old. So, I think of what I was told about not being able to have children and he is here and then I think about doctors, etc. saying there is no cure, etc. and I think only God knows what is in store for us so let Him handle it.

It sounds like you have a very loving and sweet husband so enjoy him and help each other through this bump in the road of life. Take things one day at a time and try not to plan to much in the future.

When things get bad for me I put myself in time out...I go in my bedroom and cry for about 1/2 - 1 hour and get it out of me and then I get back up and keep moving. There is nothing wrong with getting the negative emotion out. It makes me feel better.

I have done just about all the treatments for rsd in the past six years and found you never can give up hope (even when it is real bad) and just have to keep plugging away until you find what works for you. Remember to keep saying positive things out loud and thinking positive things too. It will help you to deal with life a bit easier and it is good for you. Well, hope my two cents has helped you out. Hang in there and we are all here for you any time.
Take care,
kathy d