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Old 05-23-2011, 05:55 PM
Shari_W Shari_W is offline
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Join Date: Aug 2009
Posts: 241
10 yr Member
Shari_W Shari_W is offline
Member
 
Join Date: Aug 2009
Posts: 241
10 yr Member
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Rach,
I just don't get it. For the life of me I cannot understand why a diagnosis of MG is not given when a person's condition improves once they begin Mestinon. I've heard your story many times over the years since MG entered my life in 1995.

What other medical conditions does mestinon treat?????

Myasthenia Gravis isn't a textbook disease like so many Neuros try to make it out to be. It is what they call a "snowflake" disease. Just like the pattern of each snowflake is different, many times MG can be the same way. That's why one treatment plan may work on one person but not another. Also, if you have many things going on, it doesn't mean that you don't have MG as well.

I'd like to be a fly on the wall when you go back to that Neuro...lol (Hopefully you understand what that means. I don't think you are in the U.S. so if you don't, then it just means that I would love to be there to see the look on his face when he sees you in his office again)

Good Luck, keep the faith and fight on.

My prayers are with you

Shari
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"Thanks for this!" says:
rach73 (05-24-2011)