Originally Posted by Machelle

Hi my name is Machelle. I am here looking for advice etc. My 12 year old daughter was diagnosed with leukemia (ALL) when she was 3 years old. She was on chemo every day for 2 1/2 years. She will be 7 years off chemo June 1st. She has so many late effects from the chemo. She has fibromyalgia, migraines and neurophy. I have been homeschooling her for 3 years now. She is really wanting to go back to school this year. I want her to try but I really don't see how she can handle it. My main concern right now is for her health. She was put on neurontin a month or so ago. It has really helped her neurophy. It has not completely taken it away. My daughter knows when it is time to take the neurontin again because her legs and feet will start tingling and burning again.
My concern is for a while now she starts to get dizzy, fast heart rate, hot or cold sweats, light headed, shakiness, nausea headache and shortened breath. She has had to get out of the shower before because she would get so dizzy. For the past couple of days she will start to see purple or everything goes to black. I think she is probably about to black out or pass out. I have messaged our neuro-oncologist (haven't gotten an answer yet) and she has an appointment Monday with the pediatrician. Is this common with neurontin? The neurontin has helped her so much she doesn't want to quit taking it. They did just increase her dose a couple of weeks ago to 2100 mg a day.

Any information or advice is appreciated,
Machelle