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Old 05-25-2011, 03:17 AM
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mrsD mrsD is offline
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Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
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Welcome to NeuroTalk:

It appears that you have been suffering for a LONG time.

I have some questions...

What other testing have you had besides EMGs, and MRIs?
Medical testing.
This is a list of typical tests to rule out PN triggers:
http://www.questdiagnostics.com/hcp/...eralNeurop.htm
also more links:
http://neurotalk.psychcentral.com/thread121606.html
Since you have CMT in your family, I'd get that verified for yourself ASAP. It is expensive, but it may save you from surgery if it is positive.
Our CMT thread:
http://neurotalk.psychcentral.com/thread121564.html

Can you recall what was happening when you started with your symptoms back in '05? Injury, sports, some illness like food poisoning, or pneumonia with antibiotics, chronic infections like sinus etc. Exposure to chemicals, pesticides, solvents?

This is "you've gotta be a detective" :
http://neurotalk.psychcentral.com/thread121435.html

There are drugs that cause neuropathies. Most doctors do not know this, or refuse to admit it to their patients:

http://neurotalk.psychcentral.com/thread122889.html

Some dietary intolerances can cause PN... gluten is a major one. So getting tested for gluten intolerance may reveal that.
Nightshade veggies also can give symptoms of pain and burning in the skin.

So the bottom line is that you need to do some homework and consider some things, that perhaps you hadn't thought of yet.
Most of us here have been around for years, and have seen many triggers for PN. Some is life style, some is genetics, and some it iatrogenic (doctor caused).
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

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