Quote:
Originally Posted by nanspain
you know jenn, i wasn't aware of what rsd was, i too had to look it up and boy was i really taken by surprise with what you are dealing with. jenn, you talking with your hubby was a brave, bold move yet it was exactly what i would have suggested you do. communication is key, in all aspects of life. any conflicts, even intimacy, can be managed if both parties are willing to open up and a) admit there's a problem or atleast something that need to be discussed, and b) be willing to laugh at yourself, admit you've been feeling the same way too. our partners are our lifeline, although i am saying this to you jenn, i am talking to myself. we must allow them in, let them know what we are feeling, how bad it is today, and last but not least, let 'em know we need them so much. we gotta open up, because if we don't, whose to blame when things cool off to the point of being cold? Hang in there, and keep those lines of communication, OPEN!  |
thank you for posting! i am blessed with such a great support network and hubby has never ever asked when will this end as i think he knows that unfortunately the chances of a miracle for someone like me are slim!! we are best friends and i did wonder why i never or he never brought it up but your right i need to keep those lines of communication open and hopefully when i get through this recent increase in pain which i hope settles we can see can we address these more. I am so glad to read your posts today of how well you seem to be doing since surgery i really hope that your recovery keeps going to plan but take it very slowly and just because people see you moving more easily does not mean you are able to do much my dr will not allow anything until 16 weeks post surgery. and i guess 16 weeks is nothing towards the years of pain we have endured. i had great results from my scs and was begining to get my life back but this horrible rsd has decided to spread to my right leg so as much as my back is still great my legs are in 24/7 burning pins and needles pain. anyway hoping for something or some relief next week. thank you again for your post and look forward to chatting to you soon
xx j