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Old 05-27-2011, 03:59 PM
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
Default lindy

Quote:
Originally Posted by lindylanka View Post
I wish I could have persuaded any of the the doctors I have seen to ask me those things. After 8 years they are still looking for my missing tremor. They mainly say 'What can I do for you today" as if I was looking for a new haircut... and are not pleased at all if I want to tell them that I am now falling a lot. Every time I get to see a different one I get a talk on sinemet toxicity, despite having been on a stable low dose for years. I tried to raise the issue of sleep recently and was offered an anti-depressant instead of a discussion of how it affects me....

More interested in their vision of PD than my vision of trying to survive it......

We do have a best practice guide, I guess they just haven't got time to read it.....

some make good dbs salesmen but to them it is the only option. they don't talk about clinical trials so what else is there?
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"Time is not neutral for those who have pd or for those who will get it."
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