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Old 05-28-2011, 07:11 PM
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catra121 catra121 is offline
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Join Date: Jan 2010
Location: Illinois
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15 yr Member
catra121 catra121 is offline
Senior Member
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
15 yr Member
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I know exactly what you mean...the limitations are SO frustrating and it is hard to explain to people what you are going through...especially because to a lot of people many of us "look fine." When I first got the diagnosis of CRPS...it was so frustrating going through the process of relearning to walk at age 26. I mean...seriously...I have been walking since I was a year old and now I had to retrain my body how to do it. And then there are the things like going up and down stairs...can do it...but it's painful and it's SLOW. I hate having to explain to customers at work every time I go into the stockroom that it's going to take me a little while to get something because I have trouble with stairs. I don't want them to think it's an excuse...but I also don't want people to think I forgot about them because it takes a little while. And then there's the stupid stuff like holding open a door with my foot or pushing a drawer shut with my foot...never gonna happen and I feel like an idiot every time I want to do those things that come so naturally to me. And then there's the simple matter of having to ask for help to do things that I used to be able to do perfectly will on my own before like lift something heavy or move a fixture/furniture. I used to be SO independant before and now I always have to ask for help.

Of course now I REALLY have to ask for help because now I can't even walk at all...but I can crawl. I spent a couple of months just on the couch...and that got old REALLY fast. So now I have a relay of rolling chairs set up on the wood/tile floors is different rooms. I have to crawl everywhere else if I want to get around...talk about frustrating. I love to cross stitch...but it hurts to move my arms or to lean back against the couch like I used to. So I had to figure out a new way to do it where I sit in the kitchen at the table, prop the stitching frame up on the table and my elbow on the arm of the chair so that I don't move as much. Took a while to figure it out...but I got it down now. And I can't concentrate enough to read books anymore...takes forever to just read a couple of pages when I used to be able to read 500 pages an hour. But now I listen to audio books.

It's just awful how this condition robs us of our sense of "normal." It takes a lot of effort and hard work to get back a fraction of what we used to have and even then...some days it's not even possible to have that much. Maybe if you can explain some of those things to your daughter she can understand some of your daily frustration and understand that you are doing the best that you can. There's a quote I have always liked...which I am probably going to butcher...but I think it goes something like: Just because someone doesn't give you what you want, doesn't mean they don't give all they have...or something like that. I think that may be the way your daughter will have to think about your relationship now. Of course you WANT to do more...but you can't. Doesn't mean you don't give her and the baby everything you have to give.
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