Quote:
Originally Posted by Sophie_
Hi Smae,
Thanks for this I believe the paddles are better than leads, how are things working for you? I'd love to know if you don't mind me asking. Im almost certain i'd have to have a separate device in and the Dr plans to use two different types of SCS.
All the best,
Sinéad  |
Actually, I haven't had a great experience with my SCS journey so far. My trials (both of them) were amazing and gave me 99-100% pain relief. Best 4 days of my life.
The permanent, on the other hand, has not worked. I can feel the stimulation, but I also feel the awful pain. It doesn't cancel out any part of the pain message in my brain.
My neurosurgeon has given up, along with my pain management doctor.
BUT... I am in the middle of appointments at Mayo Clinic. My neurologist there is NOT willing to accept "guess the SCS just doesn't work for you" and she is working on setting up an appointment for me to meet with someone who focuses on neurostimulation at Mayo. Hopefully they can help me try to figure out why this isn't working for me.
So as of right now, my SCS are both turned off. They aren't working. But finally there is a little glimmer of hope that one day they make work as intended and I may get some pain relief.
I'd like to hear more about your experience so far, if you care to share. I've been away for a while, so you may have already posted it elsewhere.
Sarah
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♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥
My name is Sarah and I am 25 years old. I have a lot of chronic health problems. Peripheral neuropathy and POTS (postural orthostatic tachycardia syndrome) keep me bedridden the majority of the time. I also struggle with degenerative disc disease, disc desiccation, spondylolisthesis, arthritis, polycystic ovarian syndrome (PCOS) with insulin resistance, allergies, sound sensitivities, and other health problems.