Hi Sarah,
I don't mind talking about my story and you'd proably find a more informed post somewhere else, im very wrecked toady, the pain is and i'm like a demon.
In 1995 i had an L4-5 discectomy and after getting through that which was very tough going, I eventually got my life back and led a happy normal life and anything I wanted to to do i did. Then about 5 years ago the same pain started again and I met with varios doctors and had nerve blocks, rhiztomies and nothing worked, basically two doctors told me that my pain was in my head which in all fairness was a load of rubbish.
I then heard about the SCS and only then did I feel I'd get the help I needed. I had the trial which unike you it didnt work at all but the Dr wanted to go ahead anyway, since then i've had good results with my left leg pain but my back pain is still very bad. amy Dr is considering putting in a second SCS for the back pain,
I'm very sorry to hear your problems haven't had any solution and please God they will, I believve the Dr in the Mayo clinic are very good.
I hope you're coping with your pain and it isnt getting you down too much.
Kindesr regards,
Sinéad xxx
Quote:
Originally Posted by smae
Actually, I haven't had a great experience with my SCS journey so far. My trials (both of them) were amazing and gave me 99-100% pain relief. Best 4 days of my life.
The permanent, on the other hand, has not worked. I can feel the stimulation, but I also feel the awful pain. It doesn't cancel out any part of the pain message in my brain.
My neurosurgeon has given up, along with my pain management doctor.
BUT... I am in the middle of appointments at Mayo Clinic. My neurologist there is NOT willing to accept "guess the SCS just doesn't work for you" and she is working on setting up an appointment for me to meet with someone who focuses on neurostimulation at Mayo. Hopefully they can help me try to figure out why this isn't working for me.
So as of right now, my SCS are both turned off. They aren't working. But finally there is a little glimmer of hope that one day they make work as intended and I may get some pain relief.
I'd like to hear more about your experience so far, if you care to share. I've been away for a while, so you may have already posted it elsewhere.
Sarah
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