Thread: Thought I would give you all a laugh!
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Old 06-02-2011, 05:54 AM
rach73 rach73 is offline
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Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
15 yr Member
rach73 rach73 is offline
Member
 
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
15 yr Member
Default Hi Annie
Thanks so much for taking a look and for the lovely comments you wrote.

I can cope with having zero energy, limbs that go blue at the drop of a hat, feeling sick etc. What has completely destroyed my confidence is the ptosis. It makes me feel facially disfigured. Some people may think that facially disfigured is too strong a term, but I can only tell you how I feel about the way it makes me look.

It took enormous courage to post that pic. I am ver glad that I did as I have received very positive feed back.

Thanks Annie

Rach
__________________
Diagnosed with:
Postural Orthostatic Tachycardia Syndrome,Post Prandial Hypotension, Orthostatic Intolerance, Arrythmia, unstable blood pressure, severe autonomic nervous system dysfunction ,Ehlers Danlos Syndrome Type 3,Gastroparesis,IBS,Hidradenitis supprativa
And Myasthenia is still a possible diagnosis depending on which Dr I see.

My blog address is
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Lord, grant me the serenity to acceptThe things I cannot change,The courage to change The things I can,
And the wisdom to hideThe bodies of Doctors I shot
When they said,"You're perfectly healthy,
It's All In Your Head."
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"Thanks for this!" says:
AnnieB3 (06-05-2011)