Welcome CMT2. I am currently awaiting test results from Athena for CMT. I was fortunate that my insurance decided to cover the cost. My neuro feels I have this, but I had also been taking Statins for a number of years which may complicate the initial diagnosis. I have been taking the mito supplements recommended by Mrs D and others for the past year. I have noted some symptomatic improvement in my symptoms and have been able to be more active and noticed less pain with that activity. So, it may worth trying the regimen that has been posted here.

On a separate note, I am a member of your organization as well. I have recently come across some exciting research regarding the use of Zinc fingered proteins in the treatment of PN. From my understanding, this may have applicability to the treatment of CMT. Are you or anyone in your organization aware of this treatment? Would be very interested in your take if so