Jenn, I worked in marketing for over 20 years and, yes, it's all about getting the word out. But not necessarily in a big way. The volunteers that would normally be the main support for a non-profit would be either the patients or their families. MGers often don't have the energy for what they need to do let alone volunteering.

I'm not putting down the organization, simply pointing out that MG is still not known to most people. Heck, most "healthy" people don't want to even think about medical issues.