HUGGGGGGY'S!!!!


Yes, we all have found a time where we feel like it is taking over our entire life. For me personally, I totally understand your frustration and aggravations. It took me about 3 months to come to terms with the fact that chance were, I would not get much better.

Actually it is better to come to terms with it now. It has taken it over, and the chances of remission are extremely low. Now that you are thinking over what I just wrote, please take the time to keep reading...

It may have taken it over but... You can beat it or at least fight it. Learn to cope as best as you can with the pain. Talk to doctors and follow their instructions. Do not follow them blindly. Read as much as you can about RSD, and make educated decisions on what is best for you. If they are not answering your questions or are not listening and working with you, get new ones. You need good ones to work out this fight with you!

There is a hard learning curve on adapting to having this (excuse me) sh*tty diagnoses with no cure. What you can do today may not be what you can do tomorrow. It changes from day to day and if you overdo it, there will be consequences in pain and strength levels.

Try to stay as positive as you can. I know, now that I dumped all this crappy news on you, you may be thinking ARE YOU KIDDING ME!

I am here, as so is everyone else. Vent when you need to vent, cry when you need to cry and yell if you need to yell. This is part of coping and adapting. If you start getting depressed too much, your sleep will be impaired more and your pain will go up higher (like any of us needs more pain). Eat as best that you can and remember to take one day at a time.

Super big Gentle Hugs,

If you need to chat off board, feel free to email me at:

Rainbow422@aol.com