Quote:
Originally Posted by Freesia38
(I just posted this post on 'Brain Talk' - even creating a new name, as I couldn't sign in to this one. Then after a day thinking, "where's all those familiar names/people?" I discovered I was on the WRONG WEB SITE!!!  )
So here I am on the site I intended it for.....
Back after a year or so...
I have no dx, I have had symptoms for just over 2 years on and off. I had a really good last 14 months, but in the last 2 weeks my old sx have come back badly again, (left side heaviness, tingles, nerve pain) and now I've got new ones. (dizzy, loss of balance when I turn or move my head.)
Of course my question for the last 2 years is "is it MS or not?".
I saw my GP last week who said I'd better go back to the neuro for another MRI. (She ruled out a stroke and ear problems)
My other 2 MRI's were clear 2 years ago, so the neuro kind of nicely sent me on my way as she couldn't come up with a dx of anything. VER also clear. No spinal tap done. All bloods clear. Stress perhaps?
I don't have eye problems though?
Shouldn't any lesions have shown up when I have the first MRI 2 years ago?
Seeing the neuro on Tuesday. As this is a second flare up of sx's, does it hold greater 'weight'?
Any honest thoughts would be appreciated!
My concern is if it is MS, and I don't get a dx, I can't start on meds? |
Heya hun
limbo period is dreadful. While I truly hope it's not MS, you do need answers to whatever is going on neurologically!
I bolded your point about eye problems... I've never had Optic Neuritis. I've had blurry vision, but eye specialist said my optic nerve and eyes look to be in fantastic shape.
Eye problems don't have to 'exist' as a symptom in MS, though O.N. (Optic Neuritis) is a very common symptom.
My diagnosis was based on positive MRI (done with contrast), lumbar puncture, and 2 'hallmark' MS symptoms - L'Hermittes and girdle-band 'sensation'.
I hope the new neurologist you see can give you some answers.