its took years and years for my MS to unfold and reveal itself as MS. SCary stuff! YEars of migraines, years of stumbles, burning feet, forgetfulness so bad I forgot where the O2 was on my ambulance, and years of MD after MD telling me they really couldnt see any real reason for my suffering. made me feel like a drug seeking whiner. Like I was a weakling who just couldnt deal with a normal body, doing normal things. Fast forward 5 years and a new state, with new MDs who said "well, I think you have MS" and they worked hard to prove or disprove it. LEsions, and optic neuritis equal MS. Also saw a shadow on my 5 y/o MRI that was declared a glioma! How come no one wanted to talk about that?!

So, yeah, the waiting game stinks! Have you been to an MS center? There are more than 100 diseases that can mimic MS including the lesions, so its no wonder its not an easy dx to get. From lyme to lupus to vit stuff, and sjoghrens and RA and so forth. its a dizzy lump of tangled messes that the MDs need to sort thru before they can find what fits you best. There is no blood test that says "MS" on it. Its a guessing game. if you are unhappy with your current crew, fire them and get better guessers.