Thread: Hey, Kay?
View Single Post
Old 06-04-2011, 01:17 PM
OhKay's Avatar
OhKay OhKay is offline
Elder
 
Join Date: Jul 2009
Posts: 7,046
15 yr Member
OhKay OhKay is offline
Elder
OhKay's Avatar
 
Join Date: Jul 2009
Posts: 7,046
15 yr Member
Default

Thank you ladies!

It may be months before I can get into a new neuro, so the NP and PCP want me to keep the appointment. I can't just go to any neurologist- an MS Center is optimal, a specialist in MS at the least.

Once I find a good candidate, I'm going to call and ask questions. My #1 is: What is your stance on symptom management? Do you make patients suffer until they can get in for an appointment?
Frankly, I'd rather just stick to my PCP, but I think he'd rather have me with a good neurologist.

All the treatments that are stronger than tysabri are chemotherapy- lots of side effects and not found to be very effective. I'd rather stay as healthy as I can and treat symptoms than take something that can cause severe side effects and get worse anyways. So far, I've been getting worse anyway, so what's the difference?

So far, the baclofen isn't helping, but the pharmacy insert said it may take 1-2 months to see the full benefit. My back and right hip are especially bad today (last night too)- 10/10. The tramadol is helping a little, now I'm at 9/10. I've also been alternating between tylenol and aleve.
------

Oh, I forgot to tell you! I saw my regular therapist yesterday!!! I hadn't seen her since January. I was so happy to see her, and we had a good appt. I got to discuss all my medical woes- a load off my mind.
OhKay is offline  
"Thanks for this!" says:
bizi (06-05-2011), Dmom3005 (06-04-2011), Mari (06-05-2011), waves (06-04-2011)