New Member
|
|
Join Date: May 2011
Location: Florida
Posts: 3
|
|
New Member
Join Date: May 2011
Location: Florida
Posts: 3
|
Thanks for well wishes and prayers. Jessica went to the neuro this past week (she's only been to school 2 times in the last 2 weeks). He added tow moremedications, one that works like the diamox, which she is already on 1,000mg a day, and another for nausea. She's slept wll for 2 nights! If new meds or potassium keeps dropping then they'll achedule another lumbar puncture. I've come to the realization that she will probably have this for a very long time but I guess the best thing is she hasn't lost all of her vision, she at least see's 20/50 with glasses. I am thankful for that. If anyone hears of anything new for pediatrics, pass it along, I'll do the same.
God Bless,
Lisa
|