Hello everyone! How is everyone feeling today? I have recently been tentatively diagnosed with Myasthenia Gravis. Well, they were sure, but then not, then yes, and then maybe. Ahhh medical science.

A little about me. My name is Ryan and I am a 30 yr old living in Vancouver BC. Run a cinema as a day job, make music as a hobby. About 2 months ago, I started to get weak. It progressed over a couple of days, until I woke up one day to find I could barely move without fear of collapsing. I was able to haul myself to my doctor, and on his advice, I checked myself into the ER. Admitted to hospital for 4 days where I was put on Mestinon and IVIG. For the last 6 weeks I have been back to my normal self, and enjoying every minute of it!!

That's the recent history. A year and a bit ago I woke up to find that I had double vision, and diagnosed with a Super nuclear bilateral gaze palsy by my neuro opthamologist (4th doctor that I saw). Talk of multiple sclerosis started. MRI and CT scans galore, and scheduled spinal tap on the horizon. This lasted almost a year. Going from double vision to normal vision but unable to move my eyes left or right voluntarily. No evidence of MS found, which was the best news I have ever received in my life. It's interesting because my big hit of weakness came on the day before I was scheduled to get the spinal tap. Dodged that bullet. I have had smaller MG type attacks in the past. Always brought on by big doses of stress. Gotta learn to manage stress better.

Saw the MG specialist on Friday. Got a clean bill of health. She told me that I may not have MG because a lot of things don't fit. My ACH and single fiber EMG tests are negative, thymus is normal, thyroid levels are normal although I do have a nodule on my thyroid that they biopsied. Still haven't heard about that.

Today I woke up, had my morning coffee, and got a bit scared. My body feels as though I've had 10 cups of coffee. Bit shaky, and on edge. Not weak, but my muscles are killing me. That's the fault of my friend's kids asking me to pick them up and throw them around last night. I'm freaking out because my girlfriend and I are planning on moving to New Zealand in a few months. I can't go if the MG comes back. Won't be able to afford the health care. Took a mestinon just to see. Although the mestinon didn't seem to help me that much a few months ago. My main concern is that this is about the time the IVIG should be wearing off. I hope that this isn't the case, and that it's just a case of me having too big of a coffee before breakfast.

Depp breaths. Gotta calm myself down.

Anyway, thought I'd introduce myself and share my experience. Would love to hear if any of this sounds familiar to anyone. Glad to have found this community!