Thanks for the welcome......I've had three brain surgeries for Epilepsy. i can't remember exactly when I had them done but I used to have about eight seizures a day before I had my first surgery. I was seizure free for about six months then started having them again. Went right back in for second surgery, was seizure free for about four months then developed a CSF leak.. which was like a bubble on the right side of my head. So I had to go back in for number 3 surgery.......they put a patch made out of collogen(spelling) of a pig intestin over were the leak was. Because the leak was pretty big it eroded my skull so now I have a metal plate on my right temporal lobe because I have no bone there anymore. My seizures have slowed down but I'm waiting to find out about a fourth brain surgery. It just sucks because of the depression.....and the headaches I have.
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Originally Posted by jingle
Hi Tiger lilly ~ Welcome 
I think we might have a bit in common.
My name is Nancy but everyone calls me jingle. and I have epilepsy
You're 26 ..... turn that around - lol -- I'm 62.
I adore lilies and have hundreds and hundreds ...... I have something I call the lily field and that includes some tiger lilies. When spring finally arrives in Missouri I'll be out there planting dozens and dozens and dozens more. I'll take photos and show you some. OK?
Three Right Temporal Brain surgeries ?... my goodness. I've had just one left temporal lobe brain surgery Feb 14, 2006. That removed a tumor but my seizures are back. There's a chance I'll have more surgery. I hope so.
If I'm not being too nosey, I would sincerely like to hear why you had three surgeries and how things are going. You are free to ignore me completely - no feeling hurt or anything
Like Julie said- Welcome to the forum. |