Hi all! I am 32 yrs old and live in Burlington Iowa. I was struck with MG at 14 yrs old. I was unofficially diagnosed with MG at the University of Iowa Hospital. I tested positive for MG just a couple of years ago.
I have just recently also been diagnosed with Graves. I have had constant flare-ups since giving birth to my daughter almost 5 yrs ago. I am now working to naturally balance my hormones to see if this may be the cause. So far, I feel much better and am currently free of any medical issues! I'm keeping my fingers crossed.
I have never responded to mestinon and am a prednisone girl. All of my doctors want me to stay on a maintenance dose of prednisone but I refuse because I know how bad it is for you. Predisone and I have a love/hate relationship.
Besides the MG and Graves, I have a great life with a wonderful husband of 7 years, a 14 year old son and a 4 year old daughter. I am happy to have found you guys as MG seems to be rare. I have never met anyone who has shared my pain.