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Old 06-13-2011, 04:43 PM
pixified pixified is offline
Junior Member
 
Join Date: Nov 2010
Posts: 94
10 yr Member
pixified pixified is offline
Junior Member
 
Join Date: Nov 2010
Posts: 94
10 yr Member
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Your test results are quite similar to mine. Personally, the two questions I would be most concerned with asking are:

1) What is the arterial "kinking" and what structures are causing it (ie. rib, scalene muscles, collarbone, pec minor muscles). There are a few ways to do TOS surgery, and you want to make sure your case is taken individually. Since you have axillary involvement I would ask particularly about pec minor syndrome.

2) Should you have a venous doppler because of the bilateral vein stenosis? It looks like you had the arterial doppler but not the venous one.

Technically, ATOS is only when a clot has developed that goesto your hand/fingers. Only 1% of TOS cases ever get this. I've seen one of the top TOS surgeons who does 2-3 surgeries a week. While she said I do have arterial involvement, she would not diagnose me as having ATOS because I have not had a clot. She has been doing this for 20+ years and has only had a handful of cases that were true ATOS. TOS can come with a variety of degrees of impingement to the various structures, but I don't think any doc will call your case ATOS w/out having the actual clot.

I'm just curious since our test results are quite similar, what are your symptoms?
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