Hi mommy78 and welcome to NeuroTalk!
I'm sorry you're having to suffer through the diagnosis process. It seems we all have been there at some point. Many conditions are diagnosed by ruling other things out. And it seems to take forever.
What tests have you already had? Have your doctors tested you for lyme disease?
I'm sure others will come along and offer their ideas, too. There are many friendly and supportive folks here. I hope you can find the help you need.