Quote:
Originally Posted by pingpongman
One more quick thing. DEMAND a copy of all your tests including blood work. This will come in handy in the future.
Mike
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Thanks Mike! I'll definitely do that. Especially before I move to NZ.
However, I feel it coming on once again. It is starting in my shoulders like before. Arms are very heavy. I consistently failed the "chicken wing" test as I call it while in hospital. I am sure you all know that one. Most of the time in hospital, I could barely get my arms up nevermind resist anything. Feeling it in my shoulders and upper back like before. Very tired muscles. I held them up for awhile to test my strength, and while my muscles didn't give out, they are still burning from it. I hope deep down that I am just really out of shape.
I am taking my Mestinon again for now. Going to the doctor soon, but may have to make a call to see my neurologist ASAP. might have to go for another round of IVIG. I'll do whatever it takes at this point to not end up in hospital again.
Have to get on that quitting smoking as well. I am working on that one as we speak. Don't want MG to turn into LEMS to turn into....well, you know. Yes, I do spend a lot of time scaring the crap out of myself. Every shake or tremble and I think it's an attack coming on. I have never been this tightly wound.
One question, is your sleep affected for any reason? I feel like I don't sleep very much, even though I may get 7 hours according to the clock, it doesn't feel like I slept. Sometimes not at all.