Originally Posted by tysondouglass

Hello,


I wanted to give you all an update as its been a little while for me here.


I did drive to North Carolina and then realized I needed to come back to Maine.
I realized being in California all by myself with no support would be an entirely different world that I experienced this last semester. I am still getting infusions every month and I think that combined with trying to make a rent payment every month, along with cleaning, working out, working, etc. would be a death wish.

I just drove back to Maine yesterday, and im glad Im here. I am getting an apartment here yet my parents are going to help with it. I am going to school for a couple of classes and I also applied to the hospital for a phlebotomy job. The job is per diem so Im hoping I get a call back from that soon and it wont be too much work for me.

I hope in the coming months I will be 100% and ready to venture off on my own. Possibly go to california.


MG wise I have been pretty good. When I was in North Carolina I was very worried about getting weak because of the heat...thats another reason for staying in Maine...I have felt very good since being here and i think it is partly due to the cold weather and the muscles. In north carolina i requiered a longer nap than usual but that was to be expected.

I have infusions still every month, 3days 55grams. Imuran 250/day and prednisone 40/mg a day.

I have a 'rash' on my chest surrounding my scar. It doesnt itch, and almost looks like roscalia (SP)? - NOT CORRECT...
Annieb3- you asked me one time if had a skin condition- somewhat like acne...it appears to be like that. It is like little blotches of redish/skin colored patches and it gets much worse when i take a shower with the heat.
It doesnt hurt or itch like I said and im not sure what it is, im going to call and make an appointment soon to deal with it, as its quite nasty.-Although it doesnt excrete anything. It seems to be spreading a little bit and I want it under control.

Anyways...thats it for now, im going to bed. Apartment searching in the morning. Look forward to hearing from yall.