Annie, do you know about prednisonse longterm? Ive been on it for 2 years from actually a NEGATIVE spinal reaction to IVIG and now have systemic tendonitis and am wondering if its from vitamin deficiency from the steroids.
Any help woudl be appretiated.
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Originally Posted by AnnieB3
-12? Geez, Debra, that's insane. The "gold standard" is to do Bi-Pap or intubate at -21. I've been down to -17 and it is not a good feeling. I'm so sorry you were back in that scary place again.
I cannot imagine it is not MG either. I'm so glad you got the care you needed. And I'm glad you are better. Don't let that make you feel like superwoman or anything!  You still need to take it easy.
Ditto on Sue's sarcasm. Insurance companies care about money. They do, however, cave in with evidence, phone calls and a doctor's paperwork.
Docs use plasmapheresis when other tests are negative but I don't know why IVIG couldn't be a diagnostic tool too. I hope they will declare that you have MG.
Has anyone talked about vit. D, calcium, flax or fish oil, B12, etc. because of the Pred? You have to supplement while on it long-term.
Take it easy. I hope you will not end up back there again!
Annie
Oh, if there is a next time . . . dial 911, okay? |