Junior Member
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Join Date: Apr 2011
Posts: 7
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Junior Member
Join Date: Apr 2011
Posts: 7
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Hi there, Hope you are having less pain today! I am also NOT an expert and have learned a lot by combing different forums. My son, who is 10, was originally diagnosed with TN in March. His pain has only been in his right ear. He was just re-diagnosed with Glossopharyngeal Neuralgia, which more accurately describes the location of his pain. Your symptoms may fit this dx also - it would be good to check it out. I agree with Rhonda, that you need to see a neurologist soon. Don't give up! You may have to see a couple of them in order to find someone who will really listen. Another caution; from all my reading, and from our personal experience, neurologists will stop at managing the pain with meds (which is a wonderful help), but will often not look to stop the cause/source of the pain. I know that the cause cannot always be fixed, but it's good to know that there are options beyond medication. Hang in there! Laurin
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