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Old 06-17-2011, 10:19 AM
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stevem53 stevem53 is offline
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Join Date: Aug 2006
Location: Rhode Island
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stevem53 stevem53 is offline
Senior Member
stevem53's Avatar
 
Join Date: Aug 2006
Location: Rhode Island
Posts: 1,221
15 yr Member
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Quote:
Originally Posted by indigogo View Post
This question was posed by a commenter in the recent Jane Brody Living Well with PD article in the New York Times.

It was comment #3 from Marie in Oregon
"How do you cope with the uncertainty of your future? Thanks."

How do you cope with an uncertain future?

We've talked a lot about coping with PD - but, specifically, how do you cope with the uncertainty it brings?

I think this has been central to the ways I've lived/wasted/enjoyed my life, and influenced all of my decisions - good and bad.

Most recently, I realized that I had often thought I would never see my daughter graduate from college 12 years after my diagnosis. But I did, and she did - last weekend.

I have also made some unfavorable financial decisions.

I know, I know - we could be hit by a bus tomorrow and die or be disabled - but we do know for certain what a death that includes PD would look like - we just don't know, at all, the time span and degree of disability.

How do you cope with the uncertainty? Me - I got a horse, and I intend to ride it into the sunset ...... (now that Elizabeth has graduated from college) ...... No time like the present.

To be truthful, I only have problems with pd, when I ponder how Im going to face an uncertain future

If I think dwell on it for long enough, I can picture myself in a nursing home with a gun to my head, and in a tizzy cuz my pd is so advanced, that I dont have enough strength in my finger to pull the trigger

I went through an emotional crisis, when I started experiencing some of the things you folks wrote about years ago, when I started posting here after my dx..Dyskinesia, dystonia, off periods, freezing, falling down, insomnia, etc..I found myself getting all bent outa shape, when I started getting dyskinetic in the morning when my meds were starting to kick in, so I timed it for a week..Some mornings it lasted 5 minutes..Some mornings it was 15 - 20 minutes..The longest during that particular week was a half hour, but it feels like forever when Im going through it..Off time is the same..it feels like its never going to end..

But you got to see your daughter graduate from college..( Congrats!! )..and Im still fishing..I went out 3 times last week

I made a decision, that I am going to take this one day at a time..It is so much easier to deal with one day..and when I have those times, when I feel like I am in the eye of the storm, I promised myself that I am going to think about the things that I still can do, and will do, when the storm passes, things I can be grateful for

"Find the joy in your life"

When, I feel the fear of facing an uncertain future, I think about the message in this video, and it feels so appropriate, and so right

http://www.youtube.com/watch?v=2RlFIg0micw
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"Thanks for this!" says:
budgies (06-17-2011), Conductor71 (06-17-2011)